We had the honour of hearing Bundjalung Elder, Associate Professor Uncle Boe Rambaldini reflect on this year’s theme National Reconciliation theme – Bridging Now to Next - at the recent AEDRTC Think Tank in Sydney.
The livED project - Be the voice of change for people with eating disorders
04 July 2024
livED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts uniquely developed to allow people to share their story, their way.
Research into lived and living experiences of eating disorders can take a limited view of individual stories and situations where people have to fit into the research rather than the research being built around people. The livED project aims to change that.
livED is a place where anyone who has ever experienced body image, eating or exercise concerns, anyone who has been diagnosed with an eating disorder or anyone who has a lived experience but has never shared it, can contribute to research. Contributions can be as individual as the person with the choice of journal entries, short responses, recordings, image uploads or health measures.
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livED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts uniquely developed to allow people to share their stories, their way, with the overall objective to improve and diversify the understanding of eating disorders within the community and to inform health system approaches.
We are seeking people who:
- Are 16 years or over
- Have a self-reported past or current lived experience of eating disorder symptoms, whether formally diagnosed or not
- Have access to a computer, mobile or tablet device via an internet connection
- Able to read and respond in the English language
Research/Digital contact
Dr Jane Miskovic-Wheatley, E: livedstudy@sydney.edu.au
Media Contact
Juanita Nantes, P: 0434 890 694, E: Juanita.nantes@sydney.edu.au
Help and Support
Anyone needing support with eating disorders or body image issues is encouraged to contact:
- Butterfly National Helpline on 1800 33 4673 (1800 ED HOPE) or support@butterfly.org.au
- For urgent support call Lifeline 13 11 14
Ethics
This study has been approved by the University of Sydney Human Ethics Review Committee. Any person with concerns or complaints about the conduct of this study should contact the Human Ethics Manager - (02) 8627 8176 or human.ethics@sydney.edu.au and quote protocol number [2023/895]. Any future research will be reviewed and approved by an appropriately accredited Human Research Ethics Committee.
Funding
The livED project is part of the MAINSTREAM Collaboration for Health System Research & Translation in Eating Disorders and is funded by the Australian Government Department of Health and Aged Care National Health and Medical Research Council MRFF Million Minds Mission. mainstreamresearch.org.au
Read Next
An inspiring panel of First Nations health, research, service delivery and psychology leaders will share with delegates at the Society for Mental Health Research Conference 2024 this week the critical need to change the way mental health research is conducted in Australia if we are to improve mental health outcomes for Aboriginal and Torres Strait Islander peoples.
The AEDRTC’s core vision - collaboration between like-minded researchers, clinicians and people with lived experience to change the way eating disorders research is conducted in Australia - was central to everything at Think Tank 2024.
Read Next
We had the honour of hearing Bundjalung Elder, Associate Professor Uncle Boe Rambaldini reflect on this year’s theme National Reconciliation theme – Bridging Now to Next - at the recent AEDRTC Think Tank in Sydney.
An inspiring panel of First Nations health, research, service delivery and psychology leaders will share with delegates at the Society for Mental Health Research Conference 2024 this week the critical need to change the way mental health research is conducted in Australia if we are to improve mental health outcomes for Aboriginal and Torres Strait Islander peoples.